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Category: 2015

07/12/201522/04/20172015, ALS, Archive, Celebrity, Disability, Dying, End-of-life, Medication, MND, Motor Neuron Disease, Stories, Terminal disease

Neale Daniher: Fighting to fund the cure

Neale DaniherCanterbury, Victoria Living with MNDNeale Daniher, AFL great now fighting Motor Neurone Disease (MND), is ready to open up further about the disease and disability. MND is a swift and merciless disease, […]

27/11/201522/04/20172015, Anorexia, Anxiety, Archive, Chronic disease, Depression, Dying, Medication, Stories, Suicide

Surviving anorexia, depression and someone else’s suicide

 Ashleigh Hill-BuxtonCollingwood, VictoriaAshleigh is 25 years old. Petite, pretty and obviously a determined perfectionist, she is already an old soul. She overcame anorexia and completed one year of a degree in […]

26/11/201522/04/20172015, Archive, Cancer, Chronic disease, Crohn's disease, Dying, Medication, Stories, Ulcerative colitis

Living and training with ulcerative colitis

Kane PickenElderslie, New South WalesKane is 35 years old. He is a husband, father, son and athlete. At 31, he was diagnosed with ulcerative colitis. Even though he looks healthy, […]

25/11/201522/04/20172015, ALS, Archive, Chronic disease, Disability, Discrimination, Interviewer, MND, Motor Neuron Disease, Multiple Sclerosis, Neurological disease, Parkinson's disease, Stories

We Don’t Talk About featured on Channel Ten News in Sydney

Channel Ten News in Sydney featured the We Don’t Talk About project on Saturday 22 November 2015. Thanks go to Frank Lyons, who previously shared his story living with Motor […]

19/11/201522/04/20172015, ALS, Archive, Depression, Dying, Employment, Medication, MND, Motor Neuron Disease, Neurological disease, Stories, Terminal disease

Living with MND on the other side of the world

 Frank LyonsRozelle, New South WalesFrank is almost 63. He was diagnosed with Motor Neuron Disease (MND, or known outside of Australia as ALS) a year ago. Born in Scotland, he […]

15/11/201522/04/20172015, Archive, Chronic disease, Employment, Medication, Neurological disease, Parkinson's disease, Stories

Coming to terms with Parkinson’s disease

 Rob MillerBurwood, New South WalesRob was diagnosed with Parkinson’s disease in 2010, when he was 49. He is now 54 and adapting to life with the disease. He has been […]

11/10/201522/04/20172015, Archive, Cancer, Chronic disease, Diabetes, Dying, Irritable Bowel Syndrome, Terminal disease

Life after pancreatic cancer

 Barbara RiddellKiama, New South WalesBarbara is 63 years old. I know her as a family friend – her daughter and my sister are school friends – but not intimately. She […]

09/10/201522/04/20172015, Alzheimer's disease, Archive, Chronic disease, Depression, Disability, Finances, Medication, Neurological disease

The ravages of early onset Alzheimer’s disease

 Jurg KunzleWollstonecraft, New South WalesJurg is 65 years old. Born in Switzerland, he still has a Swiss accent and European mannerisms. He was diagnosed with early onset Alzheimer’s disease in […]

07/10/201522/04/20172015, Archive, Chronic disease, Interviewer, Stories

The point of We Don’t Talk About

This project would not have been possible without the support of The Wheeler Centre, who awarded me a Hot Desk Fellowship in 2015.For the record, this post contains my original […]

© 2015-2022 Astrid Edwards.