This is what I want you to know (and didn’t say on TV)
This We Don’t Talk About story was originally published in shortened form as ‘I Feel Sorry For The Person Who Left Me This Note. They Clearly Don’t Understand Disability’ by The Huffington […]
Category: Archive
I Feel Sorry For The Person Who Left Me This Note. They Clearly Don’t Understand Disability
This We Don’t Talk About story was originally published by The Huffington Post on 2 May 2016. You can read it here. A longer, more complete version of Justine’s story is published […]
Navigating life post-cancer
Evelyn WiseRhodes, New South WalesTen years ago, Evelyn (now 62) was diagnosed with a rare and aggressive form of cancer. She survived the cancer, but lives with the effects of […]
Juggling MS, family and work: Priorities and possibilities
Mike WelshWest Footscray, VictoriaMike is a digital banking guru at ANZ Bank. English-born, he migrated to Australia with his partner, Kate, twelve years ago. They married in 2009 and have two […]
Working through the pain: A life with Rheumatoid arthritis
Becky ParozRedland City, QueenslandBecky is 41. She grew up in a dysfunctional family environment, exposed to alcohol-fuelled violence from an early age. At 18, when she was already living away […]
Getting on with it: A mother and business woman living with MS
Rachael HendryToongabbie, New South WalesRachael was diagnosed with MS in July 2014 at the age of 33. She works full time, and also runs her own side business. She is […]
Neale Daniher: Fighting to fund the cure
Neale DaniherCanterbury, Victoria Living with MNDNeale Daniher, AFL great now fighting Motor Neurone Disease (MND), is ready to open up further about the disease and disability. MND is a swift and merciless disease, […]
Surviving anorexia, depression and someone else’s suicide
Ashleigh Hill-BuxtonCollingwood, VictoriaAshleigh is 25 years old. Petite, pretty and obviously a determined perfectionist, she is already an old soul. She overcame anorexia and completed one year of a degree in […]
Living and training with ulcerative colitis
Kane PickenElderslie, New South WalesKane is 35 years old. He is a husband, father, son and athlete. At 31, he was diagnosed with ulcerative colitis. Even though he looks healthy, […]
We Don’t Talk About featured on Channel Ten News in Sydney
Channel Ten News in Sydney featured the We Don’t Talk About project on Saturday 22 November 2015. Thanks go to Frank Lyons, who previously shared his story living with Motor […]
Living with MND on the other side of the world
Frank LyonsRozelle, New South WalesFrank is almost 63. He was diagnosed with Motor Neuron Disease (MND, or known outside of Australia as ALS) a year ago. Born in Scotland, he […]
Coming to terms with Parkinson’s disease
Rob MillerBurwood, New South WalesRob was diagnosed with Parkinson’s disease in 2010, when he was 49. He is now 54 and adapting to life with the disease. He has been […]
Life after pancreatic cancer
Barbara RiddellKiama, New South WalesBarbara is 63 years old. I know her as a family friend – her daughter and my sister are school friends – but not intimately. She […]
The ravages of early onset Alzheimer’s disease
Jurg KunzleWollstonecraft, New South WalesJurg is 65 years old. Born in Switzerland, he still has a Swiss accent and European mannerisms. He was diagnosed with early onset Alzheimer’s disease in […]
The point of We Don’t Talk About
This project would not have been possible without the support of The Wheeler Centre, who awarded me a Hot Desk Fellowship in 2015.For the record, this post contains my original […]