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Category: Disability

We Don't Talk About_Sammy Moynihan

Thriving with Primary Progressive MS

Posted 23/05/201622/04/2017 WeDontTalkAboutPosted in 2016, Chronic disease, Depression, Disability, Family, MS, Multiple Sclerosis, Stories

Sammy Moynihan, CanberraAustralian Capital TerritorySammy is 27 years old. He was diagnosed with Primary Progressive Multiple Sclerosis (PPMS) in early 2013, but has felt the effects of MS since his […]

This is what I want you to know (and didn’t say on TV)

Posted 02/05/201622/04/2017 WeDontTalkAboutPosted in 2016, Archive, Chronic disease, Disability, Discrimination, Family, MS, Multiple Sclerosis, Neurological disease, Stories

This We Don’t Talk About story was originally published in shortened form as ‘I Feel Sorry For The Person Who Left Me This Note. They Clearly Don’t Understand Disability’ by The Huffington […]

I Feel Sorry For The Person Who Left Me This Note. They Clearly Don’t Understand Disability

Posted 02/05/201622/04/2017 WeDontTalkAboutPosted in 2016, Archive, Chronic disease, Disability, Discrimination, Family, MS, Multiple Sclerosis, Neurological disease, Stories

This We Don’t Talk About story was originally published by The Huffington Post on 2 May 2016. You can read it here. A longer, more complete version of Justine’s story is published […]

Bek Paroz for We Don't Talk About

Working through the pain: A life with Rheumatoid arthritis

Posted 21/01/201622/04/2017 WeDontTalkAboutPosted in 2016, Archive, Chronic disease, Depression, Disability, Discrimination, Employment, Family, Lupus, Medication, Medication side effects, Rheumatoid arthritis, Stories, Suicide

Becky ParozRedland City, QueenslandBecky is 41. She grew up in a dysfunctional family environment, exposed to alcohol-fuelled violence from an early age. At 18, when she was already living away […]

Neale Daniher: Fighting to fund the cure

Posted 07/12/201522/04/2017 WeDontTalkAboutPosted in 2015, ALS, Archive, Celebrity, Disability, Dying, End-of-life, Medication, MND, Motor Neuron Disease, Stories, Terminal disease

Neale DaniherCanterbury, Victoria Living with MNDNeale Daniher, AFL great now fighting Motor Neurone Disease (MND), is ready to open up further about the disease and disability. MND is a swift and merciless disease, […]

We Don’t Talk About featured on Channel Ten News in Sydney

Posted 25/11/201522/04/2017 WeDontTalkAboutPosted in 2015, ALS, Archive, Chronic disease, Disability, Discrimination, Interviewer, MND, Motor Neuron Disease, Multiple Sclerosis, Neurological disease, Parkinson's disease, Stories

Channel Ten News in Sydney featured the We Don’t Talk About project on Saturday 22 November 2015. Thanks go to Frank Lyons, who previously shared his story living with Motor […]

The ravages of early onset Alzheimer’s disease

Posted 09/10/201522/04/2017 WeDontTalkAboutPosted in 2015, Alzheimer's disease, Archive, Chronic disease, Depression, Disability, Finances, Medication, Neurological disease

 Jurg KunzleWollstonecraft, New South WalesJurg is 65 years old. Born in Switzerland, he still has a Swiss accent and European mannerisms. He was diagnosed with early onset Alzheimer’s disease in […]

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