This is what I want you to know (and didn’t say on TV)
This We Don’t Talk About story was originally published in shortened form as ‘I Feel Sorry For The Person Who Left Me This Note. They Clearly Don’t Understand Disability’ by The Huffington […]
Category: Neurological disease
I Feel Sorry For The Person Who Left Me This Note. They Clearly Don’t Understand Disability
This We Don’t Talk About story was originally published by The Huffington Post on 2 May 2016. You can read it here. A longer, more complete version of Justine’s story is published […]
Juggling MS, family and work: Priorities and possibilities
Mike WelshWest Footscray, VictoriaMike is a digital banking guru at ANZ Bank. English-born, he migrated to Australia with his partner, Kate, twelve years ago. They married in 2009 and have two […]
We Don’t Talk About featured on Channel Ten News in Sydney
Channel Ten News in Sydney featured the We Don’t Talk About project on Saturday 22 November 2015. Thanks go to Frank Lyons, who previously shared his story living with Motor […]
Living with MND on the other side of the world
Frank LyonsRozelle, New South WalesFrank is almost 63. He was diagnosed with Motor Neuron Disease (MND, or known outside of Australia as ALS) a year ago. Born in Scotland, he […]
Coming to terms with Parkinson’s disease
Rob MillerBurwood, New South WalesRob was diagnosed with Parkinson’s disease in 2010, when he was 49. He is now 54 and adapting to life with the disease. He has been […]
The ravages of early onset Alzheimer’s disease
Jurg KunzleWollstonecraft, New South WalesJurg is 65 years old. Born in Switzerland, he still has a Swiss accent and European mannerisms. He was diagnosed with early onset Alzheimer’s disease in […]